We got gut punched this weekend. The type of punch that moves in quick and leaves you gasping for air.
It was reality. The reality that even though Reiss may look and act like nothing is wrong, she is most definitely sick. The sickness is her congenital heart defect (CHD) and its effect on her other organs.
On Saturday evening, Reiss mentioned to my mom that she felt like she was going to puke. Instead of puking, however, she coughed up blood (hemoptysis). Fortunately, it was a small amount – about 3 dime size blood clots in a pool of saliva. For a comparison – the amount this time last year was in tablespoon and quarter cup volumes versus just counting clots.
What does this mean for surgery? We don’t really know. I left a message with the pediatric cardiology nurse practitioner at Texas Children’s Hospital this afternoon, but I am guessing I won’t hear back until tomorrow.
Since the Saturday hemoptysis episode, Reiss has only had one other incident today and it was about the same volume. Her attitude and overall state of being seems to be just fine, and we are praying it stays that way.
Please help us by praying the hemoptysis diminishes and we do not see anymore blood prior to Reiss’ May 25th open heart surgery date in Houston.
Our Brave Superhero
If you haven’t already seen it on Facebook, we made a video today. Reiss was able to get outside and play a bit while we tried to keep our mind off of the hemoptysis. Enjoy.
(Side note: the blog got a face lift today, if you didn’t notice already! I upgraded our subscription to be able to post videos, as well as get a domain. You can now get here direct through the following domain: www.ReissMaeLene.com)
“Promise me you’ll always remember, you’re BRAVER than you believe, STRONGER than you seem, and SMARTER than you think. But the most important thing is, even if we’re apart, I’ll always be with you.” – Christopher Robin to Winnie the Pooh