Today is SIX WEEKS post-op! Wow. This has gone by so slow and so fast at the same time. We have been busy trying to keep Reiss well and safe – staying home from large crowds, asking for family to change clothes and wash hands obsessively before and while around her, making children wear masks while playing with Reiss, and holding her back from jumps,runs, swings, and more.
The turn-around in Reiss post-op, or even since we have been home, has been nothing short of amazing. Talking, walking, running, dancing. All things Reiss can do without getting out of breath.
Aaaah, to just breathe.
What is that like? To be out of breath every minute of every day? To want to play and do, but be held back because your heart and lungs just can’t keep up?
All she wanted to do was be able to breathe, and now she can.
This is our new normal – going outside and running 10 feet to the pool without complications, visiting the bank to put her piggy bank change in her savings account without (too much) fear of sickness and coughing blood, looking forward to the fall and possibly enrolling in gymnastics classes.
There it is – looking towards the future. Our new normal is a new future.
We cannot begin to completely express our gratitude for all the help and prayers we have been blessed with along the way. Friends, family, and complete strangers have pitched in to help us during this stressful time.
Thank you. A million times, thank you.
This is not the end, however. Reiss’ heart journey will be a major part of her life forever. More procedures, open heart surgeries and doctors visits will be necessary to keep her going. When will her next one be and what will need to be done? We cannot be sure. What we can be sure of is this – Reiss’ new future, her new normal, will prove to be just as amazing as our little, brave girl and the medical advances which helped change her quality of life for the better.